The Social Security Administration (SSA) has added 35 additional conditions to the Compassionate Allowances program, bringing the total number of conditions included in the SSA’s fast-track approval program to 200.
Conditions given compassionate allowances are diseases and disabilities that by definition meet the SSA’s standards for disability benefits. Those who qualify for the program receive SSI and SSDI benefit decisions within weeks rather than waiting months or even years for a decision. Conditions that are eligible for the Compassionate Allowances program include certain aggressive cancers, adult brain disorders, and several serious and rare disorders that affect children. To qualify for inclusion in the program, a disability must be so severe that the SSA does not need a complete work history from the applicant to determine eligibility.
The new conditions added as of December 2012 include:
- Adult non-Hodgkin lymphoma
- Adult onset Huntington disease
- Allan-Herndon-Dudley syndrome
- Alveolar soft part sarcoma
- Aplastic anemia
- Beta thalassemia major
- Bilateral optic atrophy – infantile
- Caudal regression syndrome – types III and IV
- Child T-cell lymphoblastic lymphoma
- Congenital lymphedema
- DeSanctis Cacchione syndrome
- Dravet syndrome
- Endometrial stromal sarcoma
- Erdheim Chester disease
- Fatal familial insomnia
- Fryns syndrome
- Fulminant giant cell myocarditis
- Hepatopulmonary syndrome
- Hepatorenal syndrome
- Jervell and Lange-Nielsen syndrome
- Leiomyosarcoma
- Malignant gastrointestinal stromal tumor
- Malignant germ cell tumor
- MECP2 duplication syndrome
- Menkes disease – classic or infantile onset form
- NFU-1 mitochondrial disease
- Nonketotic hyperglycinemia
- Peritoneal mucinous carcinomatosis
- Phelan-McDermid syndrome
- Retinopathy of prematurity – stage V
- Roberts syndrome
- Severe combined immunodeficiency – childhood
- Sinonasal cancer
- Transplant coronary artery vasculopathy
- Usher Syndrome – type I
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